ABPI Association of the British Pharmaceutical Industry
Represents UK, small, medium and large, research based bio-pharmaceutical companies
ACMS Academy of Medical Science
Independent body which promotes all aspects of medical science; from basic research to clinical application and healthcare delivery
AHSN Academic Health Science Networks
Academic Health Science Networks drive adoption and spread of innovation across all areas of healthcare provision and population health.
BIVDA British In Vitro Diagnostics Association
Supports manufacturers and distributors within the in-vitro diagnostic industry
care.data care.data programme
NHS England collecting information from GP’s to eventually create a national picture of health patterns
CDSS Centre for Drug Safety Science
The CDSS undertake fundamental clinical and basic research into the causes, characteristics and consequences of adverse drug reactions (ADRs).
CHAIN Contact Help Advice and Information Network
Mutual on-line support network of people working in health and social care. Messages, questions and requests for support to health and social care practitioners, educators, researchers and managers may be sent through CHAIN.
CPIC Clinical Pharmacogenetics Implementation Consortium
International community-driven organisation developing peer-reviewed freely available gene/drug guidelines. The aim of these guidelines is to give therapeutic recommendations such as dose adjustments or suggestions for the choice of an alternative drug in the case of specific genotypes (phenotypes) that predict slow metabolism or transport of drugs or safety risks or risks of therapeutic failure. These guidelines are not mandatory but serve to facilitate the translation of pharmacogenetic knowledge from bench to bedside.
CPM Centre for Personalised Medicine
An innovative partnership between the Wellcome Trust Centre for Human Genetics and St. Anne’s College at the University of Oxford.
CPRD Clinical Practice Research Datalink
Designed to maximise the way anonymised NHS clinical data can be linked to enable many types of observational research and deliver research outputs that are beneficial to improving and safeguarding public health.
DECS NHS Trust Diagnostic Evidence Co-operative
DEC support collaborations between NHS and industry to help improve the validation, benefit, cost effectiveness and use of in-vitro diagnostics
Government body
EAPM European Alliance for Personalised Medicine
The EAPM brings together Europe's leading healthcare experts and patient advocates to improve patient care by accelerating the development, delivery and uptake of personalised medicine and diagnostics.
ECMC Experimental Cancer Medicine Centre
Network drives the development of new anti-cancer treatments across the UK
GeCIP Genomics England Clinical Interpretation Partnership
A community of disease-specific and function-specific domains – with the overarching aim of analysing and constantly refining the clinical interpretation of the 100,000 genomes dataset
Genomics England Genomics England
Set up by the Department of Health to sequence the genetic profile of 100,00 patients with rare diseases, cancer and infectious diseases
ICR Institute of Cancer Research
One of the world’s most influential cancer research institutes, with an outstanding record of achievement dating back more than 100 years
Innovate UK Innovate UK
Government support body for science and technology
INNOVATION AGENCY Academic Health Science Network for the North West Coast
A network of NHS organisations, universities and businesses formed to speed up innovation
INVOLVE Involve
Funded by the National Institute for Health Research (NIHR) to support public involvement in NHS, public health and social care research
KTN Knowledge Transfer Network
TSB communicates research opportunities to innovation communities through the KTN
MHRA Medicines and Healthcare Products Regulatory Agency
Regulates all medicines and medical devices in the UK
MRC Medical research Council Stratified Medicine
Funds research into tailoring treatments and interventions for a wide range of diseases and conditions
NHSA Northern Health Science Alliance
Eight northern cities have come together to form a single clinical academic healthcare system
NIHR National Institute for Health Research
Funded through the Department of Health to improve the health and wealth of the nation through research
NIHR BioResource National Institute for Health Research BioResource
A panel of thousands of volunteers, both with and without health problems, who are willing to be approached to participate in research studies investigating the links between genes, the environment, health and disease.
NIHR BRC National Institute for Health Research Biomedical research centres
Based in Universities and NHS facilities, NIHR-BRC lead progress in innovation and translation of biomedical / clinical research
NIHR HSRIC NIHR Horizon Scanning Research & Intelligence Centre
Identifies key emerging drugs and advanced therapy medicinal products (ATMPs), therapeutic vaccines, medical devices and equipment, diagnostic and predictive tests and procedures, rehabilitation aids and therapy, and public health interventions.
NOCRI NIHR Office for Clinical Research Infrastructure
Provides access to the UK's clinical research infrastructure
The first point of contact for talking to NICE about future products
ORPHA.NET Orpha.net
The portal for rare diseases and orphan drugs
PHARMGKB The Pharmacogenomics Knowledge Base
PharmGKB is a comprehensive resource that curates knowledge about the impact of genetic variation on drug response for clinicians and researchers.
PHG Foundation PHG Foundation
Independent health policy think-tank specialising in the application of genomics and emerging technologies for more effective and personalised healthcare
Rare Diseases TRC Rare Diseases Translational Research Collaboration
Provides world-class NHS research infrastructure to support fundamental discoveries and translational research on rare diseases.
SBRI Healthcare Small Business Research Initiative for Healthcare
Small Business Research Initiative for Healthcare is an NHS England initiative, championed by the newly formed Academic Health Science Networks (AHSNs), who aim to promote UK economic growth whilst addressing unmet health needs and enhancing the take up of known best practice.
SJS Awareness UK Stevens-Johnson Syndrome Awareness UK
Raising Awareness of Stevens-Johnson Syndrome (SJS)
Provides the public with accurate scientific information
UCB UCB pharma
Pharma company focused on CNS disorders an immunology, including epilepsy, movement disorders, rheumatoid arthritis and allergy
UK CRC UK Clinical Research Collaboration
The UK Clinical Research Collaboration brings together the NHS, research funders, industry, regulatory bodies, Royal Colleges, patient groups and academia in a UK-wide environment that facilitates and promotes high quality clinical research for the benefit of patients
UK CRC NTD UK CRC National Tissue Directory
Established to coordinate biobanking activity in the UK. Their directory of biobanks allows researchers to find biobanks across the UK.
UK CRC CTU UK CRC Registered Clinical Trials Unit Network
A network of academic clinical trials units (CTUs) who have been assessed by an international panel of experts in clinical trials research.
The information provided on the site is aimed at the following groups, both within and outside the UK:
•Clinical researchers and investigators
•Clinical research networks
•Funders of clinical research (both industry and non-industry)
The site offers a resource for clinical researchers and funders wishing to identify Clinical Trials Units (CTUs) that have expertise in centrally coordinating multicentre clinical trials, as well as in trial design, data management, and analysis.
It provides comprehensive information and direct access to high quality CTUs across the UK which have achieved UKCRC Registration status.
UK CRN UK Clinical Research Networks
Clinical research networks have been established across the UK to provide the infrastructure to support high quality clinical studies across all areas of disease and clinical need
UK EMRF UK Experimental Medicine Resource Finder
A unique resource providing information on UK experimental medicine facilities in the UK e.g. bio-banks
WCPM Wolfson Centre for Personalised Medicine
Research centre investigating whether personalised medication could help improve the burden of adverse drug reactions (ADRs) on the NHS.
Yellow Card Scheme MHRA Yellow Card Scheme
A scheme to facilitate the reporting of adverse drug reactions