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Other Organisations

As well as the UK Pharmacogenetics & Stratified Medicine Network (UKPGx), there are many organisations working on the introduction of genomic medicine into clinical settings, as well as the development of the field. You can find out more about these below.

The 100,000 Genomes Project

British initiative to sequence, and study, the role genes play in health and disease. Participants with rare diseases and cancer had their whole genome sequenced to help identify areas of the genome causing disease and to discover potential treatments. Project was completed in December 2018, with research and analysis still ongoing through GECIP and Discovery Forum.

 

Academic Health Science Network

15 Networks across England supporting healthcare improvements.

 

Academy of Medical Sciences

Advancing biomedical and health research and its translation into benefits for society.

All Wales Medical Genomics Service (AWMGS)

An NHS specialist regional health service to help and support patients in Wales who have genetic conditions, who may be at risk of developing a genetic condition or who are concerned about their family history.

British Pharmacological Society (BPS)

Are a charity and membership organisation with a mission to promote and advance the whole spectrum of pharmacology, leading the way in the research and application of pharmacology around the world. The BPS is a friendly and collaborative global community, with over 4,000 members from more than 60 countries worldwide. As of August 2023, the UKPGx Network is managed by the British Pharmacological Society.

Deep Mind

Researches and builds safe AI systems to advance science and benefit humanity.

Discovery Forum

Partnering with the world’s leading pharmaceutical companies and biotechs to unlock genomic data and accelerate new treatment development

 

Genomics England

Partnered with the NHS to provide whole genome sequencing diagnostics. Data collected equips researchers to find the causes of disease and develop new treatments.

Genomics England Clinical Interpretations Partnership (GECIP)

Provides data from the 100.000 Genome Project to support academic researchers in basic science, target discovery, predictive modelling and translational research for clinical trials, as well as oversee data access and security.

The Genomic Medicine Foundation (UK)

A registered non-profit corporate organisation providing up to date and evidence-based information on all aspects of OMICS and Genomics relevant to the contemporary practice in clinical and preventive medicine and healthcare.

Health Education England Genomics

Education Programme provides NHS professionals with learning, and development opportunites, to make the best use of genomics in their practice.

National Genomic Research Library

A comprehensive database that enables approved clinical researchers to access de-identified genomic data, health data and samples.

National Institute Health Research

Funds, enables and delivers world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth.

NIHR Clinical Research Network

Supports patients, the public, health and care organisations across England participate in high-quality research, to advance knowledge and improve care.

NHS England's Genomics Education Programme

Delivering genomics education, training and experience for the healthcare workforce. Includes the GTAC: The Genomics Training Academy.

NHS Genomic Medicine Service

Offering whole genome sequencing as part of NHS routine care. See their Genomic Networks of Excellence, including the Pharmacogenomic and medicines optimisation NHS genomic network of excellence.

Oxford Global Conferences

Oxford Global empower professionals to accelerate research and achieve impactful results through cutting-edge, curated events, industry insights, and educational resources.

SHARE

NHS Research Scotland initiative created to establish a register of people, aged 11 and over, interested in participating in health research.

Stratified Medicine Scotland-Innovation Centre (SMS-IC)

A unique collaboration between industry, the NHS and academia to develop safer, more effective therapies and diagnostic tools.

https://www.precisionmedicinescotland.com/

Ubiquitous Pharmacogenomics (U-PGx)

The U-PGx consortium addresses major challenges for the implementation of pharmacogenomic testing in patient care, considering the diversity of healthcare systems across Europe.

U-PGx PREPARE Study: Preventing Adverse Drug Reactions

Testing patients for PGx variants to allow healthcare providers prescribe more personalized drug therapies, to increase the efficacy, and safety, of  treatments.

UK Biobank

A large-scale biomedical database and research resource, containing in-depth genetic and health information from half a million UK participants.

 

UK Health Data Research

National institute for health data science, provides a common entry point to discover and request access to UK health datasets.

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